Shortness of breath while trying to sleep?
I have this right now and have had it quite a few times. It seems to happen If the clock is 4-5 in the Morning and I have yet to fall asleep and therefor very tired. I fall asleep and wakes up gasping...
View ArticleTreatment for shortness of breath?
I’ve suffered from shortness of breath for nine months. Probably the worst symptom I deal with. I’m asthmatic but my asthma was worse as a kid. It’s almost nonexistent now. What I experience now is...
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Smile if you have air hunger, POTS or a similar issue!
Hi all! For every time you longed for a non-drug, no-side-effects, zero-cost way to take back a little more of your life and not pitch forward when you try to stand and not feel starved for...
View ArticleA radical proposal or two for ME/CFS treatment. Based on similarities btwn...
So I agree with david bell's work about low blood volume in ME/CFS and also how the disease resembles a less emergent, slower sepsis or septic/hyoovolemic shock with adaptations that make it barely...
View ArticleHeart beat feeling like it is pounding very hard...feeling and hearing each beat
I have had this problem for a while but it seems to be getting much worse. I think it is probably due to anxiety but not sure. Whenever I lay down afternoon or at night I can hear and feel my heart...
View ArticleShortness of breath while trying to sleep (sleep apnea)?
I have this right now and have had it quite a few times. It seems to happen If the clock is 4-5 in the Morning and I have yet to fall asleep and therefor very tired. I fall asleep and wakes up gasping...
View ArticleTreatment for shortness of breath (air hunger)?
I’ve suffered from shortness of breath for nine months. Probably the worst symptom I deal with. I’m asthmatic but my asthma was worse as a kid. It’s almost nonexistent now. What I experience now is...
View ArticleAir Hunger
Since this is my most bothersome symptom and the one that most negatively impacts my quality of life, I'm curious how prevalent it is within this community. I've chased down a lot of rabbit trails...
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Dysautonomia: "The finger wrinkling test can be used as a screening test...
Evaluation of the finger wrinkling test: a pilot study S. van Barneveld, 1,3 J. van der Palen,2,5 and... Dysautonomia: "The finger wrinkling test can be used as a screening test before tilt table testing"
View ArticleWhat Exactly is Dysautonomia?
What is Dysautonomia? For those who may be too afraid to ask, the word "dysautonomia" simply refers to any dysfunction of the autonomic nervous system. The autonomic nervous system is the part of the...
View ArticleBurning feet when sitting? Chronic Venous Insufficiency (CVI)?
I dealt a lot with vascular inflammation, specially after exercise, when dealing with Long Covid. Last year, while attempting to swim, I dealt with a pretty big post-exertional flare, even noticed some...
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Exercise Intolerance: Insights from Invasive Cardiopulmonary Exercise Testing...
A new publication by the team of Phillip Joseph, Anne Oaklander, and David Systrom, which I personally find exciting. Insights from Invasive Cardiopulmonary Exercise Testing of Patients with Myalgic...
View ArticleOrthostatic Intolerance (OI) Basics: Dysautonomia of Blood Vessels, Low Blood...
I just read a good overview article covering all the basics of orthostatic intolerance: Common Syndromes of Orthostatic Intolerance (Stewart, 2013)...
View ArticleBrief Hyperventilation Episodes
I keep having these little mini episodes where I hyperventilate, moan, and my whole body spasms. I am compelled to thrash about like a fish in a bucket. The episodes only last a few seconds or so, and...
View ArticleHas anyone tried EECP (Enhanced External Counter Pulsation)
I read in an old post on this forum that Dr. Derek Enlander's office in NY does EECP treatments for CFS. I had never in my life heard of this modality and it sounds very promising. I found a few...
View ArticleThey found something growing in the lungs
Out if no where I was asked for a chest x ray. Only had my abdomen and brain MRI . Found nothing and blood test. For last year I thought must be CFS. My lung specialist looked at my results and...
View ArticleNAC lowers down excessive sympathetic activity
I noticed when I take 600mg NAC, my resting heart rate becomes closer to normal 60 bpm. And it also helps with POTS. After I got sick my HR is 90-100 bpm on standing, but with NAC, sometimes I even get...
View ArticleI am about to start Droxidopa...does anyone have any words of wisdom...
I saw Dr. Black at the Hunter Hopkins Center and miserably failed the Tilt Table Test. I have always had low BP (systolic under 100) and a systolic BP in the 80's with infections....but never had...
View ArticleBreathing Disregulation - ME Related?
My breathing issues seem to be related to stress/anxiety, doing things quickly, or concentrating on a project. I stop breathing during those times and then, to make up for lack of oxygen, take in too...
View ArticleLow-Flow O2 for ME/CFS and PEM
I've been doing some research into oxygen supplementation for asthma and Myalgic Encephalomyelitis. We are back into the warm season when lots of particulates choke the air. My lungs have been...
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