Shortness of breath, heavy feeling on left side of chest followed by brainfog...
Heavy feeling in the left side of my chest after exertion, heavy fatigue and brainfog? Yesterday I was walking fairly slow and some of it uphill. I have done 2100 steps a day of walking the last week....
View ArticleHaving a flare up
Hi everyone. Dealing with a flare up at the moment, it started with hurting my shoulder a bit then air hunger again, now have really bad coat hanger pain in my neck and shoulders, my anxiety is through...
View ArticleAre CellTrend tests reliable as an indication of autoimmunity?
This recent study finds no differences in GPCR autoantibody concentrations between patients with POTS and healthy controls when using CellTrend tests (ELISA)....
View ArticleSinus Congestion When Talking
I’m not typically very congested, but do frequently get irritation in the nasopharynx, which is usually the first sign that I’ve done something to trigger symptoms. But I’ve noticed on several...
View ArticleAddressing blood pooling
Vascular dysregulation has been one of my most pressing Long covid symtoms. The worst part about it is the blood pooling in my feet. In the beginning I could sit up to work without issues. Around one...
View ArticleI think Earthing cured my dysautonomia/POTS
Hi- I believe that earthing (also known as grounding) has cured my dysautonomia and adrenal fatigue. I am not in any way affiliated with earthing products. I am a disabled mom. MY HEALTH STORY For the...
View ArticlePOTS: The Remarkable condition
Those with orthostatic intolerance- I.e. symptoms that get worse on standing such as nausea, dizziness, headache- please be aware that a negative tilt test does not exclude #PoTS. Dr Gupta of...
View ArticlePhenome-wide analysis highlights putative causal relationships between...
Abstract Background Migraine is a complex neurological disorder that is considered the most common disabling brain disorder affecting 14 % of people worldwide. The present study sought to infer...
View ArticleConstruction dust reaction - looking for ideas and solutions
Hi all, I was doing well and was in a building for about 5 min that had a wall torn down (because of a leak I think) and so many fans aimed at it to prevent the leak from forming mold. It smelled like...
View ArticleI have developed symptoms of heart failure. How can I find out whats going on?
I have progressively gotten symptoms that mimic heart failure. This started maybe in march and has progressed to where I have twice been to ER which I never should have because they completely ignore...
View ArticleHas anyone tried EECP (Enhanced External Counter Pulsation)
I read in an old post on this forum that Dr. Derek Enlander's office in NY does EECP treatments for CFS. I had never in my life heard of this modality and it sounds very promising. I found a few...
View Articlecardiac stress test using chemical injection (dobutamine)
I need to have a cardiac stress test (echocardiogram) to look for heart issues. I cannot use the treadmill for it because I am disabled. Instead, I have to have an IV chemical injection (dobutamine) to...
View ArticleWhat Exactly is Dysautonomia?
What is Dysautonomia? For those who may be too afraid to ask, the word "dysautonomia" simply refers to any dysfunction of the autonomic nervous system. The autonomic nervous system is the part of the...
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View ArticleNormal blood pressure, can feel heartbeat all over body
What could explain why someone with normal blood pressure can feel their pulse all over their body? I sense it in my feet and legs, I can hear it loudly when lying down, it pounds in my neck, sometimes...
View ArticleSupraventricular Tachycardia experience
After years of seeing people here talking about tachycardia I recently found out more about it. A couple days ago I was lying in bed playing a computer game and was hit with extreme pressure in my...
View ArticleCould I easily make my own topical midodrine cream?
I have midodrine pills (5mg), but do not want to take it orally anymore. I want to make what this paper is proposing: https://jamanetwork.com/journals/jamadermatology/fullarticle/2290938 "Midodrine,...
View ArticleSudden Supraventricular Tachycardia Attacks
Hi everyone! Since about 1 year and a half into my illness, I've been getting these sudden attacks of what looks like supraventricular tachycardia. I can't say for sure as I haven't seen a cardiologist...
View ArticleCurrent or Former Patients of Blair Grubb?
If you have personal experience of Dr. Grubb I would be very interested in your advice or experience. I put myself on his wait list a few years ago and ..... forgot about it. In the meantime, I found a...
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