Menstruation & Orthostatic Intolerance
Why does menstruation make my orthostatic intolerance worse? And what can I do to counter the menstruation-related worsening?
View ArticleLow blood pressure hell
Hi everyone! One of my most debilitating symptoms of ME is low blood pressure, but I was managing it quite well with pregnenolone (12mg) and 2 capsules per day of adrenal cortex extract. However, since...
View Articlered or purple legs when standing
since a few weeks I notice that my legs turn red and then more and more purple-ish after getting up. even if I stand for just 1min.they start to change color.. is it due to NMH or OI? Has someone an...
View ArticleLow blood pressure
Way back a couple of months ago I had a low blood pressure from my doctor but he didn't think of it causing any of my symptom's . Just wondering if low blood pressure can cause chronic fatigue?
View Articlehas a corsage / abdominal binder helped you?
I'm toying with the idea to purchase a corsage since i have a feeling that could be a bit of help re O.I.and POTS. it looks like a corsage should put on more pressure than an abdominal binder and oddly...
View ArticlePalpitations in Bath
Evening everyone! Random one: does anyone else get palpitations when lying in the bath? Notice if I lie down with the water over my chest, I get shortof breath and have palpitations, think it’s been...
View ArticleIf we have low blood volume where does it go?
Pretty self explanatory question. And then since people recover blood volume must come back. What is the mechanism for this and is there any way to know if you have low volume and the problems it causes?
View ArticlePuzzling Symptom: Bending over leads to crash
So I've read a little about POTS, and I don't think I have it. I have the cognitive problems instead, but.... I have this weird thing where if I bend over my "energy clock" (I picture my energy...
View ArticlePulmonary Hypertension caused by Sleep Apnea
Hello friends. I originally posted about this here http://forums.phoenixrising.me/index.php?threads/pulmonary-hypertension-hypoxia-rhinitis.58582/ , but since I'm not able to edit that post I'll update...
View ArticleIs this POTS or another type of Tachycardia?
POTs has always been a mild syndrome for me, not causing severe nausea and dizziness/fainting etc. More just OI and a bit of a funny head upon standing + 30BPM HR increase. But a couple of weeks ago I...
View ArticleHeart palpitations
So I've posted other threads on recovering from drug use. Actually learned alot about healthy foods to eat. Amino acid therapy. Support from the great people in this community has helped me a ton. I'm...
View ArticleAutonomic Dysfunction Traced to Bilateral Adrenal Medullary Hyperplasia.
I just ran across a remarkable article that I think would be of interest to most people with ME/CFS. In particular those who have symptoms of ANS dysfunction (I think that's just about all of us). In...
View Articleincreased supine BP
My SUPINE BP which is usually 90/70 or less has increased the last few days to 115-125/82 whereas my standing BP has not changed(88-100/69-80) Im worried bec i don't feel well at all. And my doctor is...
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Lung & breathing trouble
I thought a long time about posting this here bcs I doubt the relevance but I do so anyway. Maybe for some it may ring a bell. Or some maybe able to help me out as I found out on this forum are the...
View ArticleMy nose is pinched shut inside. Is this sinusitis?
(Caution: descriptions of snot await) Two and a half years ago I was exhausted after a shopping trip so collapsed and slept for a few hours. When I woke up my nasal mucosa had ceased to work. They have...
View ArticleSudden Supraventricular Tachycardia Attacks
Hi everyone! Since about 1 year and a half into my illness, I've been getting these sudden attacks of what looks like supraventricular tachycardia. I can't say for sure as I haven't seen a cardiologist...
View ArticleHyperadrenergic pots/medical PTSD treatment
I think this is a problem that's a combination of autonomic dysfunction ans teuama from the medical system. I will now avoid going to doctors even when it's necessary or beneficial for me , because...
View ArticleAutoantibodies and ANAs
I have to tell my (family) doctor tommorrow about the autoantibodies I tested positive for. (Adrenergic, muscarinic ACh and angiotensin) At the same time I have negative ANAs (1:80) and I worry that my...
View ArticleThey found something growing in the lungs
Out if no where I was asked for a chest x ray. Only had my abdomen and brain MRI . Found nothing and blood test. For last year I thought must be CFS. My lung specialist looked at my results and...
View ArticleDo you use a rescue inhaler?
To maximize the efficiency of your inhaler, consider one of these devices. A study was done in emergency rooms and they found the spacer aka aerochamber seems to help patients are much as a nebulizer....
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